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Showing posts from April, 2023

Draft 2@AJND

Optimizing clinical complexity in neurodegenerative disorders using medical cognition tools Abstract: We illustrate conversational learning through our udhc global and local CBBLE groups around neurodegenerative disorder patients and topics as well as insights from their informational continuity through PaJR groups. We begin with a few Huntington's chorea patients family who approached us through our PaJR groups and finally traveled 2000 kms to meet us in our hospital where focused genomic studies were done that came positive for Huntington's following which our PaJR team tried to get in touch with an ongoing international clinical drug trial to see if they could register our patients. We further share our workflow around multiple neurodegenerative disorder patients to demonstrate how PaJR driven informational continuity has the potential to not just improve health professionals learning outcomes but also real patient outcomes K

Draft 1@AJND

Proposal: To discuss and thus showcase the various novel learning opportunities from each individual patient (with ultimate outcome as neurodegeneration) PaJR groups and how those were translated into learning outcomes (and if not why not)  To demonstrate how our learning outcomes from each patient impacted the patient outcomes (or otherwise with reason) To propose a modification to the current defination of "neurodegeneration" which currently takes into account only the idiopathic or senile ones (eg. Alzheimer's disease)  and not the ones secondary to any know cause (eg. In one of our cases it is secondary to electrocution) Step 1: Collate each individual patient PaJR learning events in their case report CDSS  Step 2: Understand how each of their conversational learning opportunities were translated to learning outcomes and also if not then why not  Step 3: Understand how these learning outcomes were translated to patient outcomes for each of those PaJR patients  Step 4: